2.19.2010
January Fun!
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Sarah, Cole and Elle Bea stopped by one day to bounce in the bounce house....How much fun! That's right...BeeBa was poo...
over my tantrum
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so...I am feeling much better both physically and emotionally. I have accepted that dark days are going to come, but I have vowed to myself ...
2.17.2010
a low point in the journey
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Heaven better be what God promises. Because I am starting to think this world kinda sucks. Jayden has a double ear infection and must have ...
1.25.2010
a promise of treatment?
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Here is a press release for the latest promise for Jayden and Brooklyn...and many other sweet children with Sanfilippo. We are hopeful. Plea...
1.22.2010
pics
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Mommy with no shower.... My sweet Bee-Ba! Oh, how I love this three! Go White Sox! Some wonderful youth group students, Ashton and Erin...in...
Extraordinary measures...the movie
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A while back, Jut and I realized that our world would never be the same. We were seeing THE BLIND SIDE a heart-warming movie completely unre...
1.20.2010
Thank you
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Sometimes I wish I spoke latin or greek....or could find new words for thank you that were more sufficient for how my heart feels when I rea...
1.18.2010
White picket fence.
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Throughout our journey, I have felt a deeper range of emotions than ever felt before. I didn't know pain, loss, sadness, hope, love, and...
1.13.2010
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Jayden is doing great. Out of surgery and preparing for discharge in the next 30 minutes. The tubes are in and they shrunk the adnoids a bit...
update 2
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OK latesst update...Jayden is doing great. We have not seen him but everything is ok. We are still awaiting info. but the anesthsioligst sai...
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